Advocating for recognition, prevention, and treatment of craniofacial dystrophy.

Campaigns

Mouth Taping

#tapingforcfd

This starts with awareness: wear mouth tape in public to get conversations started, bring attention to the issue, and make a physical statement about the importance of nasal breathing!

Note: Mouth taping should not cause any discomfort or distress. Only do what feels healthy for you, and consult your doctor before mouth taping.

Marathon

On Sunday 10th May 2026, Gus Hogg-Blake (founder) will be attempting to run a marathon, from Londesborough village to Queen Victoria Square in Hull, with mouth tape on the whole way.

Find out more: https://www.gofundme.com/f/marathon-with-mouth-tape.

Save the event: Mouth Tape Marathon

Route file (GPX): onthegomap-26.2-mi-route.gpx